A supportive care model for mothers of children with intellectual disabilities in selected health institutions of Limpopo Province, South Africa

Abstract

Disability is the most painful experience for the mother and relatives when a child is born. This is because every parent expects a normal child once a woman conceives. For a mother to be able to cope with their children they need to be supported emotionally, psychologically and physically by the family members, community, and health care professionals and other support service providers.The overall purpose of the study was to develop a model to support mothers of children with intellectual disabilities in selected institutions of Limpopo Province.An exploratory sequential mixed method was employed which includes both qualitative and quantitative approaches to guide the study.Population was all mothers of children with intellectual disabilitiesand health care professionals from the selected institutions where the research was conducted. Health care professionals were purposively selected whereas mothers were conveniently selected. The study was carried out in two phases i.e Phase1(a & b) and Phase 2. Qualitative results were used to build a subsequent quantitative phase. In Phase 1a,a qualitative approach was employed using descriptive and exploratory designs. Qualitative data was collected through individual interviews.Data analyses were done utilising Tesch’s open coding method.In Phase 1b was quantitative approach wherein a cross-sectional descriptive design was used.Questionnaireswere developed and data were collected from the health care professionals in the selected study areas.Data analyses were done using the Statistical Package for the Social Sciences (SPSS) version 24 and the level of statistical difference being set at p<0,05.In Phase 2, concept analysis, model development and validation of the model were performed. Themes and sub- themes were identified from the analysed data. Current study revealed that some mothers were fully supported and some were not supported at all by both the family, friends, relatives, community members and health care professionals. Hence continuous support was seen to be very crucial to them.The study recommendations include: open communication, social, psychological and emotional support, combined available support services, access to special schools and formulation of support groups.